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The Drooling Begins
I knew drooling was part of the ALS journey but it’s one part that I’ve been dreading. My drooling isn’t bad while I’m sitting down but when I lay down my mouth feels like a slow-running faucet. If you...
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The Hoyer Lift
Ready or not I have graduated to a Hoyer Lift to help move me and the first time we tried it wasn’t pretty. We’ve had this big beast parked in our spare bedroom taking up valuable space for a few...
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My Poor Tongue (Part One)
Last week during the night I was jolted awake because my tongue was sandwiched between my tightly clenched upper and lower jaws and I thought I was going to bite it off. Somehow I was able to wake...
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My Poor Tongue (Part Two)
I woke up the next morning feeling relieved that I didn’t have any more tongue-biting incidents. As my day rolled on I started to get nervous about the upcoming night because we didn’t yet have a...
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